maddy706 Posted August 19, 2005 Report Share Posted August 19, 2005 I am looking for help too raise money to send a 2yr old little girl Rachel and her family too Disney-Land Paris. I am hopin too have a pigeon sale and lookin too see if anyone would have any birds too donate. Please try and help. I will tell u a bit about Rachel , her family her illness and why i want too help. Rachel is 2 yr old she has a twin brother and also an older brother. She has beautiful red wavy hair and the most beautiful eyes, she is like a little angel. Rachel suffers from an illness called " Metachromatic Leukodystrophy " MLD for short. MLD is a recessive genetic defect that sadly there is no cure for. It is so rare that only 1in 40,000 are effected by it. Rachel being the first case in Scotland for about 30-40 years. There r 3 types of MLD Late Infanltile Juvenile Onset Adult Onset Rachel has Late Infantile: normal development the first 6-18 months then followed by a progressive nervous system involvment: Loses previously gained abilities Loss of mental ability Blindness Impaired swallowing usually requiring a G-Tube directly into the digestive system Paralysis Dementia Convulsions Blindness Rigidity uncontrolled muscle tightness painful cramp loss of all meanin contact with all around about Rachel has already lost the ability too walk She also suffers bad muscle cramps and rigidity Also as u can c in her picture she has a feeing tube inserted in her nose,she goes into hospital in October to get the G-Tube inserted directly into her digestive system This beautiful little red head with her big eyes and beautiful smile has been through so much pain already in her short life. And still has more too face. Of an illness that Doctors don't know enough about because it is so rare. And which will ineveitably end in the death of Rachel. Can you help raise money too send Rachel, Owen , Dean and her Mummy & Daddy too Disneyland Paris I am hopin too hold a pigeon sale also sellin on here as webmaster suggested. I can't do it alone so please help. If anyone would like too donate just post it on here and we will get something sorted. Thankyou everyone who has taken the time too read this Quote Link to comment Share on other sites More sharing options...
Guest Posted August 19, 2005 Report Share Posted August 19, 2005 Will gladly donate to your cause just get in touch. yorkie Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 19, 2005 Author Report Share Posted August 19, 2005 Thankyou so much Yorkie will be in touch soon Quote Link to comment Share on other sites More sharing options...
liverpool_boy Posted August 19, 2005 Report Share Posted August 19, 2005 maddy when kids are sick or not we will help as much as we can if its birds or somthing for the raffel just let me know thanks maddy your hart is in the right place. Quote Link to comment Share on other sites More sharing options...
GREENGRASS Posted August 19, 2005 Report Share Posted August 19, 2005 anything i can do to help just let me know. Quote Link to comment Share on other sites More sharing options...
AlanWilkins Posted August 19, 2005 Report Share Posted August 19, 2005 you can stick me down aswell ill find some thing decent or a pair of young birds next year Quote Link to comment Share on other sites More sharing options...
johnny11 Posted August 19, 2005 Report Share Posted August 19, 2005 Not much point me putting up any birds but will try and donate something Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 19, 2005 Author Report Share Posted August 19, 2005 firstly i would like too say a big thankyou too mealybar, who took the time too put my pics of Rachel on here for me., as i didn't have a clue how too do it. I would also like too thank everyone who have so far answered and offered there help. Whether it be birds or something too raffle it is very much appreciated. Will keep u updated with Rachels progress: Rachel has Doctor out today her breathin is bad and a terrible smell comin from her throat. She has an infection in her lungs. Fingers crossed she'll pick back up Once again thankyou Maddy Quote Link to comment Share on other sites More sharing options...
Guest Doostalker Posted August 19, 2005 Report Share Posted August 19, 2005 Maddy, stick me in for a pair of next year's youngsters. Quote Link to comment Share on other sites More sharing options...
Guest NUMA Posted August 19, 2005 Report Share Posted August 19, 2005 i'll gladly help just let me know if it's a yb next year or a raffle prize thats wanted. Quote Link to comment Share on other sites More sharing options...
billy Posted August 19, 2005 Report Share Posted August 19, 2005 same here just let us know if its a pair of youngsters you want for next year Quote Link to comment Share on other sites More sharing options...
jimmy_bulger Posted August 19, 2005 Report Share Posted August 19, 2005 hi maddy, sorry to hear of the little girls plight i would willingly donate a pair of marcel braakhuis young birds. yours in sport. jimmy bulger Quote Link to comment Share on other sites More sharing options...
jimmy white Posted August 19, 2005 Report Share Posted August 19, 2005 HI MADDY, SO SORRY TO HERE OF RACHELS PLIGHT, PLEASE ALLOW ME TO GIVE A DONATION, JUST LET ME KNOW WHO I CAN GIVE IT TO, THEN YOU CAN LET ME KNOW YOUV RECEIVED IT JIMMY Quote Link to comment Share on other sites More sharing options...
THE FIFER Posted August 20, 2005 Report Share Posted August 20, 2005 COUNT ME IN FOR SOMETHING, THE FIFER. Quote Link to comment Share on other sites More sharing options...
Silverdale Lofts Posted August 20, 2005 Report Share Posted August 20, 2005 Maddy ill donate 2 young birds next year. Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 21, 2005 Author Report Share Posted August 21, 2005 Hi Everyone I will be in touch with u all soon up too u what u would like too donate. Anything would be appreciated . Thankyou so much for your help you r all very kind hearted people Maddy Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 26, 2005 Author Report Share Posted August 26, 2005 Hi Sorry i not been in touch been busy trying too arrange things. Will hopefully have things sorted soon , but will let u know as soon as . Glad too say Rachel doin ok they have her on strong pain relief so she is sleeping a lot Thanx Maddy Quote Link to comment Share on other sites More sharing options...
speedbird Posted August 26, 2005 Report Share Posted August 26, 2005 yeah put me down 2ybs come on guys its a good cause lets have a super yb sale & lets send rachel to disney Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 27, 2005 Author Report Share Posted August 27, 2005 Thanx Speedbird Rachel doin not bad just now she has gotten over the difficulty in breathing last week. Altough she a bit doped up she still managin the odd smile Bless Her Quote Link to comment Share on other sites More sharing options...
maverick Posted August 27, 2005 Report Share Posted August 27, 2005 i will find something for you to help hope everything goes all right and you get plenty of support Quote Link to comment Share on other sites More sharing options...
jimmy white Posted August 27, 2005 Report Share Posted August 27, 2005 im glad to hear that rachel hes got over the breathing difficulties now,and to hear shes managed a smile, is so uplifting, god bless you rachel. were all thinking of you. Quote Link to comment Share on other sites More sharing options...
celtic Posted August 28, 2005 Report Share Posted August 28, 2005 Put me down for a donation Quote Link to comment Share on other sites More sharing options...
maddy706 Posted August 29, 2005 Author Report Share Posted August 29, 2005 Well i am so grateful for everyone that are willing too give something too help raise money too send Rachel too Disney Land and also help with research into MLD. I am still arranging everything and will be in touch with u all very soon once again Thankyou. Maddy Quote Link to comment Share on other sites More sharing options...
jimmy white Posted September 6, 2005 Report Share Posted September 6, 2005 maddy hope rachel is doing better please get back to me as soon as you can jimmy Quote Link to comment Share on other sites More sharing options...
jimmy white Posted September 6, 2005 Report Share Posted September 6, 2005 maddy706 is trying to do a wonder full job please keep this to the fore, just look at the photo of rachel im quite sure with the help of the forum members, we could, get her to disney land i am hoping to speak to maddy shortly to see what can be arranged, as she is not getting the help she needs, only from the forum members Quote Link to comment Share on other sites More sharing options...
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