We need your help (not fundraising)

[Guest Grasshopper Lofts]

Hi everyone,

As you may all know my daughter Courtney was born with a condition called DDH, its where her leg was dislocated at birth and has gone undetected. it was picked up at 2 and as you all saw from the photos the cast and operation was awfull. this can be avoided if picked up at birth.

 

My partner and hundreads of other mums that are part of steps-charity are trying to raise awareness to other parents about the condition so they can pick up signs of DDH themselves we have 2 reports done with BBC NEWS and ITV YORKSHIRE. dont know if anyone saw them

 

Were also trying to get the PCT's to change the hip law in which they check babys hips at birth with ultrasound we have already susscefully changed this law in Jersey but want to change it in the UK.

 

They started their campaign at the house of commons on tuesday in which they were listened to and given the option that if they can get all our MP's to back this campaign then they will look at changing the law and or improving the way they check hips.

 

This is where you all come in we need hundreads of MP's to sign the "early day motion" i would be so gratefull if you could copy the letter i have copy and pasted and send to your local MP. if we can get all MP's to sign this form then it would mean thousands of new parents and babys that our born with DDH or other hip defects can have treatment straight away, this would mean less trauma to the child and there parents.

 

If you need help finding your MP please email me and i will find there information out for you.

 

Help Keep the Baby Hip Screening Campaign going.

 

 

This is just the start of the campaign; we mustn’t let this momentum slip. It is now essential that we get as many MPs as possible to sign the Early Day Motion (EDM) “STEPS RESEARCH INTO DEVELOPMENT DYSPLASIA OF THE HIP†sponsored by Dave Anderson, MP for Blaydon. Dave was very moved by our ‘hip’ stories and is determined to do all he can to make screening for DDH more efficient. We need to get as many MPs as possible to sign this EDM and we need your help to do this.

 

 

 

This is the kind of letter you might wish to write, please use your personal details and story. You do not have to have a child with DDH to ask your MP to support this EDM – all babies have this check therefore it affects every potential parent, grandparent, aunts or uncles etc.

 

 

Sample letter.

 

 

 

Dear

 

 

 

As your constituents, we implore you to sign the early day motion number 826 drafted by your fellow MP, David Anderson, MP for Blaydon on 23rd February, entitled STEPS RESEARCH INTO DEVELOPMENT DYSPLASIA OF THE HIP (please see the link below).

 

 

 

http://edmi.parliament.uk/EDMi/EDMDetails.aspx?EDMID=37901&SESSION=899

 

 

 

Every baby in the UK has this hip check at birth and 6-8 weeks and because the disability is hidden it is very important that the check is done competently and thoroughly. The health of our children depends on this. The STEPS Baby Hip Screening report launched at the House of Commons on the 24th February revealed that over 50% of Primary Care Trusts have no formal policy or guidelines. It’s hardly surprising that so many babies are missed and have a late diagnosis. You can download a copy of the report from: http://www.steps-charity.org.uk/links/6-207-baby_hip_health_week_2009_the_report.php

 

 

 

We are very happy to attend your surgery in person to discuss this in greater detail should you so wish or give you more information by telephone or email. We look forward to hearing from you and again beseech you to become involved in this cause by signing the Early Day Motion.

 

 

 

 

 

Yours sincerely

 

 

 

Name

 

Address:

 

Other contact details[/color]

 

It would mean so much if they can change the law and get our future children and grand children properly hip checked at birth please please help us.

any questions feel free to ask

 

thanks

 

[retired]

Will happily do it Damien.

 

I work at the local Conservative club and our MP is there at least once a week.

 

make a change for me to actually want him to be there!!

[OLDYELLOW]

well Done Damian  

[Peckedhen]

Will do Damian. Many years ago now, my daughter at 12 months, ended up at a specialist because she was only taking her weight on one leg.  Luckily it was nothing but so easily could have been.

 

Sue

[Guest Grasshopper Lofts]

Will happily do it Damien.

 

I work at the local Conservative club and our MP is there at least once a week.

 

make a change for me to actually want him to be there!!

 

thanks chris really appreciate it

[Guest Grasshopper Lofts]

Will do Damian. Many years ago now, my daughter at 12 months, ended up at a specialist because she was only taking her weight on one leg.  Luckily it was nothing but so easily could have been.

 

Sue

 

thanks sue im really glad your daughter was ok i would have hated you to go through what we are now.

[Guest Grasshopper Lofts]

well Done Damian  

 

thanks mark you know my situation more than most and have been a great friend throughout  really appreciate it mate

[Peckedhen]

 

thanks sue im really glad your daughter was ok i would have hated you to go through what we are now.

 

No problem Damian.

 

Come on guys - most MPs can be contacted by email - just cut and paste the sample letter and add your personal details - two minutes of your time. ;)

 

 

[DAVIDL]

i think my sisters child has just had this operation done 8 days ago....she has a pot up her body which has to stay on for at least six weeks. doctors say its because she was born early???   is this the same thing? she was walking with a limp....

[Guest Grasshopper Lofts]

i think my sisters child has just had this operation done 8 days ago....she has a pot up her body which has to stay on for at least six weeks. doctors say its because she was born early???   is this the same thing? she was walking with a limp....

 

Hi David is the cast like this one if it is or similar there is a good chance its the same thing. You will be looking at around 3 months for the cast to be on depending on which operation your sisters baby has had there are afew options Please give them our best wishes as its a very emotional journey i hope everything goes smooth. The steps charity are a god send if she ever needs any support and advice all the best.

 

Damian

[pjc]

will send a copy Damien and also forward to my brother whose daughter has the same problem with one hip although they are holding off opporating at the moment.

 

Phil

[Guest Grasshopper Lofts]

will send a copy Damien and also forward to my brother whose daughter has the same problem with one hip although they are holding off opporating at the moment.

 

Phil

 

thanks alot phil is your brother holding of the operating or the hospital mate hope your littlen is ok now is she home as yet

[pjc]

they found the problem when she was about 2 and said they wouldn't do anything until she was 7, when they reassesed then they decided it was improving and the socket was growing and have left it for the moment. She is now 9 and still runs arround like a loon.

Mines doing well, growing well but just hope it continues.

 

Phil

[Guest Grasshopper Lofts]

they found the problem when she was about 2 and said they wouldn't do anything until she was 7, when they reassesed then they decided it was improving and the socket was growing and have left it for the moment. She is now 9 and still runs arround like a loon.

Mines doing well, growing well but just hope it continues.

 

Phil

 

;D ;D glad she never had to have it mate sure everything will work out just fine with your daughter mate

[pjc]

hope so, cheers Damian.

[Guest Grasshopper Lofts]

thanks alot miko for the pm

[Gail J]

all done sorted with Rhondda valley mp

[Guest Grasshopper Lofts]

all done sorted with Rhondda valley mp

 

thanks alot gail really appreciated

[pjc]

Damian, was she born breach?

[Gail J]

pjc don't forget the spring fayre and all you welsh fanciers out there, the welsh cakes will be there and all donations to this charity, so dig deep

[Guest Grasshopper Lofts]

Damian, was she born breach?

 

she was forsep delivery mate

[pjc]

i shall look forward to seeing you Gail as norm!

[pjc]

 

she was forsep delivery mate

 

 

Reason i asked is i've just been told the condition is more common in breach baby's and they have started routinely scanning breach babys in this area.

 

[Guest Grasshopper Lofts]

 

 

Reason i asked is i've just been told the condition is more common in breach baby's and they have started routinely scanning breach babys in this area.

 

really never new that im glad there is some kind of system in place there mate will save baby and parents alot of heartache

[Guest anto]

shes a bonny little las come on you boys and girls over there do your best 2 help this cause

well done mate the very best of luck 4 the future